DIPG Nurse Navigator

 Connect one-on-one with a nurse navigator to (1) help you better understand the diagnosis and treatment options available, (2) connect you to the proper resources you need, and (3) support you any time throughout your family’s entire DIPG/DMG journey. This is a free and confidential resource for patient families.

Offers treating providers of Diffuse Midline Gliomas, including Diffuse Intrinsic Pontine Gliomas, patient centered advice on innovative treatment options and clinical trials. This is a free and confidential resource for patient families in the United States. Visit the site today to learn more.

This site provides you with a network of resources on DIPG, to include facts and general information on DIPG/DMG, information on research and clinical trials, as well as links to additional support resources like the DIPG Warrior program and foundations that provide financial grants to families in the fight.

 The Hope Portal is a searchable database that provides access to a robust list of support organizations around the country. Survivors and families can search for essential financial assistance for survivor camps, financial support, transportation, and home/living expenses. 

 FindHelp.org is a free, nationwide resource that connects families affected by childhood cancer with local support programs based on their ZIP code. Families can search for financial assistance, transportation, lodging, food, utility assistance, mental health services, housing support, childcare, legal aid, and other community resources that can help ease the financial and practical burdens of a child's cancer diagnosis. No referral is required, and the platform is easy to use and available at no cost. 

 LiveBrave supports families battling DIPG/DMG brain tumors by streamlining the application process for multiple foundations. Many of us have faced similar challenges, worrying about unpaid bills and travel for clinical trials. At LiveBrave2gether, we understand and are here to help you navigate financial support. 

 NoahBRAVE Foundation is another family-founded nonprofit dedicated to supporting children diagnosed with pediatric brain tumors—especially DIPG/DMG—and their families. The organization provides personalized emotional and financial support and funds research to advance better treatments and a cure. 

While The Cure Starts Now's mission is to fund research, this particular resource links to their page listing partners who offer financial assistance to families of children with brain cancer.

 The Pediatric Brain Tumor Foundation is a national organization dedicated to supporting children with brain tumors and their families. Their programs include educational resources, family support, survivorship services, and opportunities to connect with a community that understands the unique challenges of a pediatric brain tumor diagnosis. 

Cannonballs for Kayne offers assistance grants to families with children under 21 years of age who are battling DIPG/DMG brain cancer. Applications are considered based on available funds. 

Team NEGU believes every child fighting cancer deserves joy, the opportunity to smile, and encouragement to never give up. Visit their site to access their list of childhood cancer resources and to join ClubNEGU to receive monthly JOY Jars for your child.