Our Inspiration

Our Hugs from Hailey program seeks to brighten the days of children diagnosed with cancer.  We send personalized care packages to children who are battling DIPG/DMG to help them #PowerUpAgainstDIPG and encourage them to keep fighting. We also send treats and toys to our local St. Jude Affiliate clinic at Huntsville Hospital to let little childhood cancer warriors know how special they are. 

We would like to expand this program to serve childhood cancer patients, regardless of cancer-type, being treated at the St. Jude Affiliate Clinic at Huntsville Hospital here in North Alabama. If you are interested in becoming a sponsor for this program expansion, please contact us at princesshaileyshope@gmail.com.

Our Hope from Hailey program raises funds to support DIPG research so that an effective treatment will be found. We have joined the DIPG/DMG Research Funding Alliance (DDRFA), in which we partner with 50+ foundations and families to leverage resources and fund critical DIPG-specific research grants. We fund research recommended by the Medical Advisory Council twice a year in the Fall and Spring. 

We also help fund the National DIPG/DMG Brain Tumor Board, which offers referring oncologists advice from a panel of DIPG experts on the best treatment paths forward for their patient at critical junctures in a diagnosed child's journey (e.g., at diagnosis, following radiation, first progression). This advice is a free and confidential service to patient families in the United States.

Clinical trials are available to families of children who wish to pursue treatment beyond palliative radiation therapy, the current standard of care for kids diagnosed. These trials represent HOPE for kids in the fight. Our Hops from Hailey program provides gas gift cards to families of children enrolled in clinical trials/expanded access programs to help offset the cost of travel to their child's treatment center and #fueltheirfight.