Ways We Help Support Patients & Fund Research
Hugs from Hailey
Hugs from Hailey
Hugs from Hailey
Our Hugs from Hailey program seeks to brighten the days of children diagnosed with cancer. We send personalized care packages to children who are battling DIPG/DMG to help them #PowerUpAgainstDIPG and encourage them to keep fighting. We also send treats and toys to our local St. Jude Affiliate clinic at Huntsville Hospital to let little
Our Hugs from Hailey program seeks to brighten the days of children diagnosed with cancer. We send personalized care packages to children who are battling DIPG/DMG to help them #PowerUpAgainstDIPG and encourage them to keep fighting. We also send treats and toys to our local St. Jude Affiliate clinic at Huntsville Hospital to let little childhood cancer warriors know how special they are.
To date, we have sent 140 Hugs from Hailey packages to children battling brain cancer, primarily DIPG/DMG. We have also provided an additional 41 Hugs from Hailey to our St. Jude Affiliate Hospital here in Huntsville.
Hope from Hailey
Hugs from Hailey
Hugs from Hailey
Our Hope from Hailey program raises funds to support DIPG research so that an effective treatment will be found. We have joined the DIPG/DMG Research Funding Alliance (DDRFA), in which we partner with 40+ foundations and families to leverage resources and fund critical DIPG-specific research grants. We have established the Hailey Acevedo
Our Hope from Hailey program raises funds to support DIPG research so that an effective treatment will be found. We have joined the DIPG/DMG Research Funding Alliance (DDRFA), in which we partner with 40+ foundations and families to leverage resources and fund critical DIPG-specific research grants. We have established the Hailey Acevedo DIPG Research Fund at St. Jude Children's Research Hospital to support their efforts at finding a cure for this disease.
We also help fund the National DIPG/DMG Brain Tumor Board, which offers referring oncologists advice from a panel of DIPG experts on the best treatment paths forward for their patient at critical junctures in a diagnosed child's journey (e.g., at diagnosis, following radiation, first progression). This advice is a free and confidential service to patient families in the United States.
Hops from Hailey
Hugs from Hailey
Hops from Hailey
Clinical trials are available to families of children who wish to pursue treatment beyond palliative radiation therapy, the current standard of care for children diagnosed with DIPG/DMG. These trials represent HOPE for children in the fight.
Thanks to grant funding from IronMountain Solutions Employee Peaks Fund, our Hops from Hailey prog
Clinical trials are available to families of children who wish to pursue treatment beyond palliative radiation therapy, the current standard of care for children diagnosed with DIPG/DMG. These trials represent HOPE for children in the fight.
Thanks to grant funding from IronMountain Solutions Employee Peaks Fund, our Hops from Hailey program provides gas gift cards to families of children enrolled in clinical trials/expanded access programs to help offset the cost of travel to their child's treatment center and #fueltheirfight.